Tuesday, January 15, 2013
Just to back up a bit. On Sept 26, 2012 I had a pretty massive surgery, RNY Gastric Bypass. No lap band for this chicka, I wanted the whole kit & caboodle. Go big or go home, right? Anyone reading this blog knows that I was pretty fat. Unhealthy fat. Not a good example for my 3 daughters fat. I don’t really know what events led me to laying on that operation table, but I got there. And I needed it. On the day of surgery I was 5’10” and weighed 250 lbs.
I bounced back from that surgery just fine, and within 11 weeks had lost 42 pounds. It was life changing.
As things progressed with my body, I made the decision to have a 2nd surgery, and on December 4, I had pretty much a full front body lift. The surgeon removed all of the hanging skin from my abdomen, and lifted and reduced my breasts. I thought that once again, I would be sore, and have to take it easy for a week, but would bounce back no problem. I left the out patient surgery with two painful surgical drains, 4 prescriptions, one for pain, one muscle relaxer, one anti nausea to help with the pain meds, and one anti biotic.
Everything went ok for about a week. And then the nausea hit. Apparently the anti nausea meds had the reverse effect for me. And heaving with my new golf ball sized stomach against my new hip to hip incision was enough to see stars. It went on for about 2 weeks until I just stopped taking any medicine altogether. I finally got in to see the surgeon where they confirmed that the meds were making me sick. It was a rough couple of weeks. I went from 210lbs to 185lbs. I was scared to even drink water.
Meanwhile, it was Christmas. Stuff needed to be done. Work needed me to come in and get things accomplished. And now, thanks to my heaving and poor circulation, I had a hole about the size of a clementine little sweetie right above my incision that looked not only alarming, but disgusting as well. It literally looked like I had been shot in the stomach. Apparently that complication is common in patients who have lost a lot of weight. Ugh. At that point I still had my drains in, which meant I still couldn’t take a shower. 24 days of it. Most mornings I wanted to cry. But that is the thing about elective surgery, you can’t cry. You chose it, and people are anxious to point that out. No room to feel sorry for yourself. The surgeon felt sorry for me though. Armed with his sincere apology, personal cell phone #, and an endless supply of oxy and muscle relaxers, he sent me home to try and celebrate the holidays with my crew. Greg, as usual, was a saint. He did all of the Christmas duties, from wrapping to baking Santa’s cookies, to cooking Christmas dinner while I continued along in my drugged state. Everything hurt. It hurt to breathe. It hurt to take the pain meds that were too big for my now tiny tummy. I can only sleep on my back, so even my butt hurts. I was sleeping too much, so I would find myself staring outside, starting to hallucinate. I hated being bed bound, and not able to do any of the tasks/lists that I was starting to accumulate in my head.
It is now about 6 weeks later and I still hurt. I still have a huge hole. Dr says it will heal, and he will go in and preform another tuck to get rid of what will surely be a heinous scar. My boobs look great though! If I look at myself in the mirror and only gaze from the new belly button up, I want to do the Toyota jump for joy. If I look waist down, I want to pass out.
In the past few weeks, I have learned a few things though.
A) The people/family/friends that you assume will be there won’t necessarily be there. I had in my head that certain friends would be kicked back with me in bed watching dvds and laughing the days away. And it just didn’t happen like that. Some people never came by to visit; some came only after I pointed out how lonely I was, and some people who I would have never expected to dropped by, which was a total surprise. You just never know. I had a former coworker/husband of a friend drop off cookies. Totally random. But still a much needed surprise.
B) No matter how gross you are, your husband will still be “your husband”. Don’t get me wrong, Greg was a total champ. He emptied drainage bulbs, changed bandages, gave me meds every 4 hours, helped with sponge baths and so on. But no matter how much I smelled, how miserable I felt or how gross I was, he still found something that was a turn on. I still can’t make it thru a bandage change without being worried that he is going try and cop a feel. It is still almost daily that I am reminded “you didn’t have surgery on your mouth”. Boys will be boys I guess.
C) Drugs are crazy. I have never been a fan of narcotics. I don’t like not being able to drive; I don’t like feeling unsure of what I said, etc. And while they have been a life saver this go around, the hallucinations are something else. It has given me true perspective for people with genuine mental health issues. I have seen animals, relatives, moving figures, etc all as real as can be. It would blow your mind.
D) Showers are amazing. Going 24 days without a shower can really mess with your head. I did my best, washing in the bathtub as high as I could go, washing my hair in the sink daily, but still. Sometimes you just need to have that water pouring on you to feel better.
E) Being not fat is amazing. Not having your every thought be about food is so liberating. Even though I feel like hell, I cannot believe how different I feel. Never mind the appearance part. It is strange that I don’t recognize my own hands or feet. Being able to take a deep breath, not having my back hurt every single day. Being able to dance with my girls without running out of breath. And having ta tas that stand up on their own is pretty dang nice too.
F) Your kids don’t care. Big baby knows that I have a hole in my stomach, and while she is very concerned that Greg doesn’t do it any further damage, she is primarily concerned that my boobs and my butt are ok. Which for her, makes perfect sense. AB is a little hurt that I am home all the time, but not playing with her during that time. Tessa is, well Tessa.
It has been life changing.
Thursday, July 19, 2012
It's a real pisser~
One of the worst spots in the house is our master bedroom, which after having the luxury of being the upstairs room that hosted the diaper genie for over a year, and being Prissy's toilet of choice, is really, really due for some “fresh air”. Being the stellar mouth breather/sleeper that I am, combined with the steam from the en suite bathroom shower, and having the side of the bed located dangerously close to the master toilet, this Mama was oh so eager to have those carpets restored to their original state of only harboring mold and mites.
Sometimes life is just a real pisser ~
Tuesday, May 29, 2012
VaJazzle!
Tuesday, May 22, 2012
Does the mom hair cut lead to mom jeans?
Thursday, May 17, 2012
Parenting via TV
Wednesday, April 11, 2012
Please turn off my brain
1:27am Crying. Loud crying. “Mamaaaaaaaaaa”
“Ignore her, at some point she needs to learn how to sleep thru the night.”
“But she is going to wake up Molly. And everyone else for that matter.”
“She will stop eventually.”
1:46am Still crying.
“I will give you anything you want if you go get her and bring her up.”
“Ok.’
1:50am “Mama, mama. I was missing you. Where’s my baba? Where is my pillow? Mama, help me. Mama, you wrap me?”
Amazing that I can actually smell her tears. Her little hands are wrapped tightly around her bottle as she gulps, gulps, gulps herself back to sleep. One hand loosens its grip and finds a chunk of my hair to twist as she dozes.
2:46am “Mia, you have to move over, I have no room. Christine, move over so she can scoot over. Ugh!! I should just go sleep on the couch.”
5:06am Alarm. Snooze.
5:15am Alarm. Snooze.
5:24am Alarm. Snooze.
5:33am Alarm. Snooze.
5:42am Alarm. I’m up, I’m up. Crap, G is occupying the shower. Should’ve snoozed again. Crap, it’s 5:45am, I am so late. Pee. Why do we still have freaking rv toilet paper in the bathroom?
Brush teeth. Eyebrows are really, really bad. Cannot put off wax any longer. Really should take off makeup before going to bed. If not because it’s bad for skin, because I should stop scaring the girls and myself when I wake up.
5:50am Shower. Crying. “Maaaaaamaaaa, you cuddle me? Maaaamaaaaa.”
Hurry up. Should’ve shaved. Legs are gross. Dry off. You are going to be so late.
More crying.
Ugh. Seriously? Please stop crying!! Whose idea was it to have kids??
6:15am No time for breakfast, grab soda to take to work.
6:33am Not so bad, not too late.
Seat warmers are a good thing. Stay awake. Traffic sucks. STAY AWAKE! Remind G to refill heart medicine. Why do I have to nag him? He’s an adult. Still need to buy little girls jackets. Horrible mom, it’s been months. Shit! Speaking of months - Note to self- MUST GET MIA’S EPI PENS PRESCRIPTION REFILLED!! So lazy. ugh. Who lives like this?
Chronic Liver Disease.
7:05am. Work. Not too late. Even had time to pick up coffee.
Bank draws. Customer funded. Change Order #8. Pay interest payment for spec. Don’t forget to process payroll. Internet not working, suckage.
Do not forget to process payroll. Hurry up so you don’t get stuck staying so late, and you might be able to wax those horrible brows. Should really schedule dental appointments for the girls. Bella still hasn’t had well child check for her January birthday.
“Did you send out the checks for the P**** job? Customer A is calling to see where they are.”
Chronic Liver Disease. What if she dies?
“How late can you stay today?” “Did you receive the invoices from *** Concrete? They want to know which liens you are missing.”
Liver Failure. Don’t forget to pay the freaking cable bill; otherwise you won’t have internet service at home either.
10am
Must file paperwork for Sec of State for Elementary School Boosters. Otherwise this chick will never stop emailing. So tired. Need more coffee. Wonder if I should get blond highlights? Text Molly, remind her to take AB to Wednesday meeting. Molly says running low on lots. Must go grocery shopping.
Lunch. Gas light is on.
Check fb. So many stay at home moms. I miss my girls. Maybe we should add 1 more to the mix? G would freak. Should be making grocery list instead of facebooking. Should be skipping lunch and getting gas. Wonder what Crystal is up to?
Meeting with potential customers in 2 hrs. Boss is yelling again. Sigh, happy to stay back in my office out of the way.
I miss my old office. Miss my old boss. Should be thankful to have a job. Must text old boss and remind him I will be late on Friday since Mia needs lab work done. Super suckage.
Liver Failure. Can you have a transplant as a toddler?
Check the mail. For the 2nd time today. File B&O taxes. Upload data file with backup copy of quickbooks instead of accountants copy.
Funny. One would think if you are uploading a data file to an accountant then you would send an accountant’s copy, huh. oh well. Nothing like a waste of an hour. sigh. tired. Molly says #1 being a brat again. What is the deal? Call home, talk #1 off the ledge. My nails look like crap.
Wonder what is on TMZ today. Wonder what Brett Favre is doing? Still raining. I miss Vegas. Missed call from brother. Crap. Wonder what he is doing. Newly married, how fun. Jealous.
Run to post office. Gas light is still on.
Could swear I just saw my dad walking out the post office. Weird. Probably not normal to be seeing dead people, lol. Wonder if there is a heaven? Probably not. He probably wouldn’t be there anyway.
Back to office.
Crap, easily going to be here another couple of hours. G wants to know what to make for dinner.
Phone is ringing. Cell phone is ringing. “Are you going to be able to come to the car lot today?” “I need you to stay here for a meeting.” “Did you process those change orders yet?”
Leaving. Now. No matter how much is left to do. Need to actually help AB with her homework. We are awful parents.
Traffic. Rain. 16 miles into gas light.
People should really be able to handle driving in rain here. Brutal. Liver Biopsy. 2yr old with extremely out of range levels. Her ALT is better, but not anything else. Are you sure she isn’t exposed to anything environmentally?
6:15pm.
“Wow, you are home early. No car lot? Don’t you need to be over there?”
Seriously?
Crying. More crying. Fighting over a soda.
My 2yr old with liver failure is drinking a diet soda. Wonder if that would qualify as an environmental exposure? 7yr old is watching TV. By herself. Again. And she is starting to get boobs. Sigh. Still tired.
“Mama, open door! You open door for your baby!” “Mia, let go of the door handle like that, you are going to break it.” “This is your baby, mama! Big baby sit on your lap?” “No, you cannot sit on my lap while I am going potty.” “I lock door mama. Tessie no come in.”
8:00pm. Gummy vitamins, melatonin, bottle, downstairs. Tantrums. More tantrums. Tummy aches. Fights over the sleep timer.
8:30pm. Lay down with #1. Talk about her day. Talk about the fact that no one is helping with her homework.
Dig thru the 6 baskets of unfolded laundry to find cozy clothes. Hate doing laundry. If I ever win the lottery the 1st thing I will do is hire someone to do the laundry. G is doing the dishes again. Should really be helping instead of playing Draw Something. I wonder if he will go get us Blizzards. Maybe he will get gas for me?
10:15pm “When you do you want to pay up your “I will give you anything you want if you go get the baby” offer?” Shit.
11:08pm Forecast says rain again.
Forgot to pay the cable bill, again. Forgot to get Mia’s Epi-Pens refilled. Should go to sleep and stop googling liver biopsy. I can see my awful brows in the reflection of the ipad. Rude. Liver Failure. ugh.
Thursday, September 1, 2011
Wednesday, August 31, 2011
So it actually is a big deal?
It's frustrating and hard to believe when professionals keep telling you something is wrong, but your eyes and sense of reason tell you differently. I know families deal with shock differently. But you usually hear about someone who gets a diagnosis, and suddenly all of the symptoms start to make sense. Or a person has a symptom and the Drs can't figure the problem. Not our case at all. As far as we know, she doesn't have one single symptom. I think I was choosing to believe my eyes instead of my medical bills. I am still putting off her next blood draw, which was supposed to be done 2 weeks ago. I don't want to hold her down so someone can stick needles into her, and listen to her scream. For what? More dead ends? For a problem she doesn't seem to suffer from? That's my reasoning. My world is becoming unbalanced. I am starting to sympathize with those people who don't take their kids to Drs, they just pray for things to get better. Sometimes I wish I prayed. But my issues with God are a subject for an entirely different post.
And I don't think that I am that far off base.
Does this look like someone who isn't healthy? The kid can eat a double cheeseburger like a champ. She lifts and carries things around twice her size. She can run lap after lap around our kitchen island, for what seems like hours. She can sing every word to You Are My Sunshine. And she does so, every night. She knows that if Mommy or Daddy leaves the house, they are most likely going to work. She waits her turn to get her hair done, and she is smart enough to know whether Annabelle or Tess have had their turn and yells at them to get in line next. She helps herself to water from the dispenser in our fridge. She knows which iphone is mine, and which one is Greg's just by their covers and promptly rats us out if we are snooping on one another.
I had pretty much come to the conclusion that the Dr's were wrong. They are only human too, right? They can make mistakes. Sure, her blood levels were high in the hospital. I get it. And when we followed up they were high again. But they are coming down. I guess it has been 5 months, and if I think about it, that is a long time to recover from whatever it is that caused it. But then I had a bit of a shock. While enrolling AB in school, I realized I needed a copy of her immunization records. I went to The Vancouver Clinic and enrolled in their nifty new online MyClinic program. Sweet. From home you can access immunization records, lab reports, test results. Later that evening I checked it all out. Pulled up Mia's labs from the end of July. I knew that they were still slightly out of range. Around 90 for one of the liver function tests, when the top range was supposed to be 60. But then I pulled May's labs. The same test had a result of 723. Holy cow. More then 10 times the normal level? That seems crazy. I did the 1 thing any logical person would do. I googled it. Which let me tell you, never is a good idea.
The next day I went about my business. Daily grind, but with a now larger, bigger monkey on my back. By ignoring the issues, am I letting my baby get worse? How damaged is her liver? Why doesn't any of it make sense. She's fine, right? I am just a little neurotic.
Then we got her hospital records in the mail.
Wednesday, August 24, 2011
WWYMD? Or, what would your mama do?
Anywooo..... this leads me to my most recent conundrum. Mama recently scored last minute tickets to see this little cutie pie in concert:
My Annabelle happens to be a HUGE fan, and I don't mind her music one bit. Well, unless it has been hours, and hours, and hours of it. Sang by a 6 yr old. Still, pretty exciting. And not cheap, especially for this mama, who is on a pretty strict budget and currently swinging 2 jobs in order to pay for some other agenda items. I got a great deal, $150 for both, but certainly a luxury for us. I thought #1 would just about die when I gave them to her, but while she was happy and smiling, you could probably describe her reaction as "lukewarm" at best. Crapper. In fact, my ever loving, supportive husband was standing behind her giving me his best thumbs down and chuckling whole heartedly to himself. Whatever. Fun hater.
So not exactly Beatlemania, but still excitement, happiness. Going to the Rose Garden on a school night, probably Red Robin on the way, and no little sisters to cramp our style. Easily coolest mom on the block, right?Until last night.
I worked late, got home about 8ish, Greg had been a wonderful hubby, girls had been fed, kitchen was in decent condition and he had dinner waiting. We ate, played with the girls a while, then Mia called it a night, and Daddy put the bigs to bed. I was hanging out, catching up on emails and fb while Greg was out bringing in the garbage cans and yard debris bins from trash day. I looked up as the garage door opened, half smiling, expecting to see my darling husband walk back in and tell me how heavy it was to haul the yard debris barrel down to the backyard, as he always does. Except it wasn't him. It was my two daughters, ages 6 and 3, walking in from outside. In their pajamas. Confusion and concern at the same time. Greg followed shortly, and I quickly met his eyes with my best "WTF?" look. "Yeah, these "angels" were outside and met me when I turned the corner with the garbage can." Huh? I looked at Annabelle. "We were scared mom, so we went outside" she says to me like it makes perfect sense. "Through the downstairs slider?" I ask. "Yeah" she says with annoyance, since I am asking such a stupid question. "Since when do you just get to leave the house when you feel like it? And with your little sister?" Clearly things aren't good, because for once in her life Tessa knows now is not the time to be talking. "I know how to open the gate!" AB responds, informing me that apparently that is all you need to know how to do in order to come and go @ Casa de Mongrain. "Go to bed, now," I growl. "And stay there." "You are in really, really big trouble, and in danger of losing some big privileges." I was so stunned I didn't even know what to threaten.
The girls scampered back downstairs, Greg & I sat on the couch and looked at each other. "I guess tomorrow I will be looking at getting a padlock for the gate," he says. "So they were actually outside, just walking around?" I asked, still absorbing the mutiny. "Yep, they were pretty surprised to see me come around the corner," he responds.
We are interrupted by someone struggling to open the baby gate at the top of the stairs. Someone with dark brown hair, approx 60 lbs, and who may not live to start her 1st day of 1st grade at this point. "You forgot my anti-scare medicine" she mumbles when she finally makes it to face me. "Bella, I don't care if we forgot your anti scare medicine, GO TO BED!" She looks back at me, pathetic and indignant at the same time. "Mom, you forgot my anti-scare medicine" she replies, and I realize that she doesn't know/care/understand that I just worked for 12 hours, had a pretty stressful day, have a headache from the quintuple iced venti non fat marble mocha macchiato I had earlier, and that by choosing not to go to bed, she is most certainly sealing her fate.
“Annabelle, if you are not in your bed in 2 minutes, you will NOT be going to the Taylor Swift concert.” Crap. Tears, sobs, snot.
“Mom, I really, really want to go to the concert, I just need my anti-scare medicine.”
“I’ll give her the medicine,” the voice of reason/Daddy chimes in. “Because I don’t want her to have any reason not to go to bed.” Full medicated with anti-scare medicine/liquid Vitamin D, back to bed she goes.
Followed by 4 more return trips back upstairs, sobs of “I really want to go to the concert, but I just can’t stop thinking about it.” And a variety of other excuses. And Mommy and Daddy explaining several times that she might be able to go, if she just follows directions and does what she is supposed to. Which she doesn’t, until she does. Finally.
So now what? Do I parent the way I probably should, teach her a lesson about following our instructions, so that the next time I give her instructions and have to threaten with a consequence, it actually means something? But then that means no concert, and that Mommy suffers too. And trying to sell the tickets, or lose the $$, neither of which I am thrilled about. Or do I justify it by telling myself that she usually does what she is told, and a special occasion like this is totally a good enough reason to not follow through? On 2nd thought, it is probably my fault anyway, right? I should have never opened my big mouth and threatened with something I wouldn’t want to sacrifice. What kind of fighter pulls out the big guns and doesn’t have the nerve to pull the trigger? Mommy guilt, no matter what. Either I am a lazy parent and a push over or I follow through and we all pay. Sigh. Totally not a decision that should be decided without a glass of wine, in the bath. Neither of which are likely to happen soon. So I guess I will ponder it while going to the bathroom, in between telling Mia “no, you cannot sit on my “lapee” while I am going potty” and yelling at #1 & #2 to stop fighting.
What would your mama do?
Monday, August 22, 2011
~Weekly Words of Wisdom~
Upon being found by her daddy Saturday morning, face covered in chocolate,
"I can't ask you yes or no if you are not here."
Tuesday, August 2, 2011
Mama vs. The Bitch
Last Friday night Annabelle began her very first season as a Pop Warner Cheerleader. So very exciting. She is practically jumping out of her skin. We started with the orientation meeting on Friday eve, located in the very "vintage" Angelo's Pizza in Camas. Yes, cheer meeting in a pizza parlor. Does it get any better? At the meeting the very direct league director went over all of the rules, from no earrings, no nail polish, what kind of shoes they needed and where to buy them, to how many laps the girls would be running if they were late to practice. She also mentioned their 1st fund raiser, a cheer camp the very next day, from 9am - 2pm @ the local middle school. Cost was $50 and the girls were going to be working hard, learning a dance routine and 3 important cheers. Belle was practically drooling. "I can go right mom?" I told her I needed to check with her dad, but probably. Apparently these Pop Warner people take this stuff quite seriously, because the director lady and her assistant director lady informed us that the district competition was on the Friday following Thanksgiving, and that check in was on Thanksgiving itself. I nearly choked on my full calorie Pepsi (diet isn't offered at Angelo's). What??? On Thanksgiving? My heart started racing. Who does this? Don't these people have family values? Don't they realize what this means? What kind of example would I be setting for Annabelle if I let her think that some sporting event is going to bump Black Friday shopping? One of the other mom's must've felt the same way because she quickly asked if it were for all the girls. "Not the Tiny Mites & Mighty Mites, just the older girls," the director responded. "But be prepared for it if you want your daughter to continue to cheer as she ages into the older teams" piped up her assistant. Whew! Crisis adverted.
The next morning Annabelle has no trouble getting herself out of bed on time. Sturdy shoes, check. Water bottle, check. Sack lunch, check. Sunscreen, crap. No sunscreen. Oh well, she has some sort of Hispanic heritage, and they rarely get skin cancer, right? Bad mom. She reminds me that we need to buy her the cheer shoes the coaches requested from Walmart. "We will B, I promise" I told her. We were in the car and thankfully on time for once. I mentally applaud myself for taking the extra time after last night's meeting to find and locate the middle school the camp and practices are held at so that we wouldn't be late. We pull into the middle school and make the trek up the hill to the field everyone is gathering at. She turns in the registration form they gave us last night at the pizza parlor and seems to be fine. "Just go mom," she says. "Really?" I respond "there doesn't seem to be very many girls here yet, and I don't even know who your coach is." "It's fine, I will figure it out, I'm brave" she says. Ok, I think. I give her a hug and a kiss and tell her to have fun and start the long walk back to the car with my heart in my throat. She looks so tiny standing there all alone. All the crazy thoughts start to run thru my head of abducted children and how on earth I would handle that, I silent them and instead begin to worry about whether or not she will make friends or have to eat her lunch by herself and etc. I make it to the car, where my thoughts are drowned out by the audio from Mulan II that I failed to turn off even though there were no kids in the car.
Greg, myself and the crew make it back @ 2pm to see the girls perform the dance routine. It was adorable. She survived, LOVED it and is completely hooked. She can't wait for practice on Monday.
Sunday eve I get an email from the coach introducing herself, and reminding us that practice is on Monday @ 5:30. Crap! They said 6:00 at the pizza parlor. I promise myself to leave work right @ 4pm to make it back to Washougal, grab the girl and make it to practice on time. I am super relieved to get another email the next morning stating that practice is indeed at 6pm. After a quick stop for Starbucks, AB & I make it to the field only a couple of minutes late. We trek up the hill to the track where camp was held and where the director said practice would be only to discover that the cheerleaders are no where to be found. Only tiny little footballers, so stinking cute in their tiny little football pads, and cute little football pants. Maybe Greg will let us have one more, so we can have a boy. I wonder how much in vitro is now a days? Our luck he would come out and top out about 5'7", right? "Mom! They are way down there," #1 proclaims. Back to reality. I follow her finger to the field at the opposite end of the school and we march towards the crowd dressed primarily in pink. "Run B, just run over and I will catch up with you. Don't run in front of the football players." I grab my handbag, folding chair, AB's water bottle, and of course my coffee and start the trek after her.
We make it to the right spot, and the coach welcomes her. "Over here Annabelle, come stand in line with your team." Sweet. No room or reason to be shy. I really hope that some of these girls are in her class or at least school when she starts. A gal that looks to be about 16 comes out and starts showing the girls what stretches to do. AB looks adorable, and klutzy. So cute. I can't really hear what they are saying, but the fact that the entire gaggle of them are all lined up and following along with the stretches is amazing. The assistant director comes out and starts calling off names. She must be splitting them up into their appropriate ages groups. "McKenzie, Abigail, Shelby, Annabelle" she yells. She continues with about 5 other names, until all the mentioned girls are standing and awaiting the next direction. "All of you have not turned in your physical from your Dr, so you will not be participating." WTF? Physical? No one said anything about a physical. OK, well maybe they did. But that was back in like April, when we signed up. Nothing about when it was due. One of the mom's of the other mortified girls is speaking up. She says they will just go home, no need to sit here for 2 hours if they can't practice. "No," the assistant director states, "they need to stay and watch. They are learning 4 cheers today that they will need to know for tomorrow." Annabelle looks over at me with watery eyes and mouths "Mom?" Crap. I hoist myself out of my chair to move in closer and be able to hear the details.
Apparently the black listed girls can't be on the field with the other girls, but can sit to the side. "What difference does it make?" I ask the Asst Director. She spins her head quickly to see who dares question her authority. "It's a liability issue." She snaps. "They can't practice." "Well how come no one happened to mention this on Friday at orientation, or at camp?" I respond. "And how come she was able to go to camp? How come you were able to take her $50, and let her practice for FIVE hours?" "That's a fundraiser," she says. I tell myself not to over react and then I am reminded not to embarrass my kid when she starts tugging on my shirt. Ok, fine. Whatever lady. Clearly you don't have a heart, or kids, judging from your size 2 leggings and the ability to keep your nails filled and roots maintained on a timely basis. Obviously you don't work and this is your only chance to assert your authority. You can have this one. Karma is a wonderful thing.
I take a deep breath, prepare myself to concede when she says "Are we clear? Can we move on? The girls who have their act together shouldn't have to suffer because your daughters don't."
BITCH! The word was almost out of my mouth, before I saw the group of 20 5-8 yr olds watching intently. This isn't a big deal I tell myself. It's just cheer leading. For a 6 yr old. My rage subsides into guilt when I hear Annabelle say she doesn't feel good. Which is just code for humiliation. "It's fine," I say to the shrew. "We will have it tomorrow." I instantly start to run through the handful of girlfriends who might bail me out of jail when it comes to light that I forged the signature of a medical professional in order to get it turned in by tomorrow afternoon. Crap.
I squat down to talk to my daughter, while the group of other rejects sit and watch us, their moms standing back a few feet. "Listen baby, don't freak out. We will turn it in tomorrow, and everything will be fine. Honestly, it's a bullshit rule. What difference does it make if you practice over here, or over there, 10 feet away? If something happened to you mommy is here to take you to the hospital or Dr right away, it makes no difference if you have the dumb form or not. She's just being a bitch."
"Moooooooom, don't say that. I like her. She is really pretty." Of course she does. Dang. Mama - 0, The Bitch - 1.
"Of course you do, I like her too," I back pedal.
"What are we going to do?" she moans. "I can't remember 4 cheers."
"Don't worry about it" I say, " We can learn them." Her eyes are huge, panicked at the thought that I might do something else to mortify her, as I stand up.
So we stood there, for 2 hours and practiced, 10 feet away from the "girls who had their acts together". I bent my chubby self into positions that my body hadn't seen in years, and copied the coach, constant glares from the asst director and all. I smugly noted to myself that she clearly didn't have children when she brought out her perfectly organized binder when she said to the girls "keep those arms straight ladies. Don't think I can't see you. I have 5 kids, I see everything." Fudge. Of course she does. She probably stays at home and home schools them, and works graveyard and then makes it home in time to have sex with her husband. Every day. I hate my life, seriously.
We wrap up practice and head home, luckily Greg has answered my furious texts and has figured out that hopefully we can just fax the golden form to Dr to fill out vs trying to schedule a same day appt and make it to work and to practice again the following evening. AB is tired, and quiet. I congratulate myself on making sure she still at least knows the cheers and won't be way behind for tomorrow's practice. If she can practice, please Dear God let me find a way to get the damn form completed. Oh well, even if we can't, we can still go and do the same thing again, right?
I let her stay up later then usually, watching a dvr'd Big Brother with Daddy. At about 10:30, I tell her it's time for bed, she needs rest and energy for tomorrow. "Ok," she says. "You are going to get my physical done, right mom?" "Of course, Belle. It's really no big deal, " I muster. I start mentally running through my list of potential bailer outers again. "Good," she says. "I am so excited to practice with the other girls. And I really want the coach to like me, she is so nice!" Really? "I am glad, sweetie. She seems really nice to me too," I mumble. Crap.
Mama-0, The Bitch-2.
Monday, August 1, 2011
I want my old life back. My simple, ignorant life where lack of sleep was my biggest problem.
I don't want to deal with waiting for ultrasound results to see if my baby has a tumor.
I don't want to throw up in my mouth after I read the package of molasses cookies we had been giving the baby all weekend and discover it was manufactured with tree nuts.
I don't want to give my happy, giggly little girl extra kisses when she goes down for a nap and then swallow the lump in my throat because the neurotic side of me thinks that she might go to sleep, have her liver fail and never wake up.
I don't want to shudder then tell myself to shut up every time she points to her right side and says "hurts".
I don't want to not discipline her properly because I am worried she is sick.
I don't want to hold her down, listen to her sob and yell "mommy" while someone sticks needles into her anymore.
And days like this, when I am really, really just done with it all, I tell myself, I am not going to do it anymore. They can't make me right? She looks healthy. She acts healthy, why am I listening to the same damn people who told me there was probably something wrong the whole flipping time I was pregnant, when they were wrong that time and are probably wrong again? How can she have liver disease when she seems FINE?
It's not fair. I did everything I was supposed to. I didn't smoke, I didn't drink, I didn't do drugs. I switched to decaf (well mostly. I tried, I swear, I really tried). I went to all the stupid Doctor's appointments, even though I didn't want to. I mean really, who has the time and energy to sit in the hospital 3x a week for 12 weeks? But I did it, and now it doesn't count or matter. Why is there something wrong with my baby?
So I get mad, I tell myself that I am not going to deal with it anymore. No more stress, no more worrying about sickness, Dr visits, and how on earth we are going to pay for all of it. They say ignorance is bliss for a reason right? I picture scooping up my girls and my DH and moving somewhere far, far away. Rural and where they make their own medicines and treatments. Last night while I was taking the puppy out to eat and go potty, I closed my eyes and fantasized about living somewhere in the country. We could have our own garden, the girls could have any animal they wanted. Life would be so much better! I was snapped back to reality when I heard scratching and clawing on the fence, and looked up to see a big raccoon hissing at the puppy. I nearly crapped myself. Ugh, so maybe somewhere not so rural would be a better idea?
Monday, July 25, 2011
Mia's Liver vs the Doctors
1. Contrary to what we were told at the hospital, an allergic reaction can cause liver issues. The GI specialist told us it can even cause liver failure. The Dr @ the hospital had told us that there was no way her high levels could be related. She seemed to think they were too high to be correlated. So good news and bad news. A-hopefully her high levels are incident related and will come back to normal. B-she didn't eat very many nuts. Greg guesses 2 or 3 at most. If we get our wish and her levels are just related to the allergic reaction, we will pretty much have to put ourselves on high alert, 24/7, which is tough, especially with a toddler.
2. Apparently Mia's levels were remarkably high. At our appointment we had another Dr come in and say hello, and she greeted Mimi as "our little medical mystery" and said that her levels were "impressive". Well, I guess that all depends on your perspective huh?
3. Her issue is still a bit of a mystery. While elevated levels can be a number of things, celiac disease, hepatitis, etc. it is unlikely that it is any of those since she doesn't have many other symptoms, and she is appearing healthy on many other levels. Right now, her only symptoms are the elevated liver function test levels, and an on going rash. Dr also seemed to think that we could be continuing to expose her to something that her body is treating as toxic, since she has an on going rash.
She actually tolerated the Dr and let him examine her, which is a huge change. She usually goes a little nuts as soon as we walk in. And while she does know what is going on to a certain extent, she did pretty well. As soon as they call her in, she starts asking "hurt? hurt?" which is heart breaking, but luckily she didn't freak today. I have started asking whoever we are going to see to not wear their lab/white coats into the exam room, and it seems to be working so far. She even let them weigh and measure her. At 22 months, she is 36 inches tall and weighs 37 lbs.
During the physical exam, the Dr thought that he could feel her liver, but said that could be normal, or it could still be inflammed.
Our next step is an ultrasound this Friday am. No food or drink for Mimi for the 4 hours prior to the ultrasound will be absolutely delightful, but what are you going to do?
After the ultrasound, then we will have more blood work done in about 6 weeks, they are going to review her enzyme levels again, and also test for a variety of other possibilities, and then a follow up with the GI Specialist.
As long as we make it thru the ultrasound and they don't discover a tumor or any major liver damage, we are in good shape, so for now we are holding our breath and crossing our fingers for that. Hopefully since our appointment is in the morning, the Dr will be able to review the results that afternoon and not make us suffer thru the weekend.
Thanks again to everyone for all of your support. We will be so relieved once this is over. Every time she says she has a stomach ache I get the chills and try not to freak out. It will be nice to get back to normal life and just worry about all the normal things!
xoxo,
Christine
Thursday, July 7, 2011
Update on the Mimi Monster and her pesky liver!
Apparently Portland is lacking pediatric specialists. Last year when she needed to see the neurologist, she saw the ONLY one in Portland. When we got our referral to the GI specialist we learned that there are only 2 offices in the area, and they originally couldn't see her until September. Our Dr called and requested they see her sooner, and our appointment is now moved up till July 25.
Even with an appointment that close, the Dr has requested she have continued blood tests. Those suck. She freaks out (of course) and it is a horrible experience. When I took her on Tuesday afternoon, she was so combative, they tried & tried and poked & poked, but couldn't get a vein, so we were sent home with instructions to come back the next day.
Originally our Dr suspected that her levels may have been high from her allergic reaction (essentially the nuts were poisonous). But when her levels failed to come down, we kind of ruled that out. Enzyme levels can be high for a variety of reasons, anything from a hereditary disease to cancer to overdose on drugs, even a vitamin D deficiency. The levels just show that your liver is being damaged from something.
Also - before we left the hospital, the Dr suggested a blood test to determine if her allergy was to nuts, shellfish, or both. We found out a couple of weeks later that it was cashews. Thankfully, not peanuts. I followed up with the allergist, and we had the "prick" test, which revealed cashews as we already knew, along with a new allergy to hazelnuts. The allergist informed us that it is very common to have one tree nut allergy, and develop an allergy to the remaining tree nuts shortly thereafter. Apparently this is commonly discovered/diagnosed between the age of 1 and 2 when toddlers start having a variety of foods. She recommended avoiding all tree nuts, along with peanuts (as most foods with peanuts have tree nuts mixed in, and it's not uncommon to develop a peanut allergy as well) and to maintain a nut free household. Greg had given her a peanut butter and jelly sandwich, and she had no reaction, but the allergist recommended not doing that again.
So, for the past few weeks, we have been avoiding all nuts, and giving her a liquid supplement of Vitamin D (800 mg) each night in her bottle.
And this morning I got good news! Not great, but good. Her ALT & AST levels are way down. The last time they tested, her ALT was 723 and anything above 52 is "out of range". Yesterday it was down to 90! Last time her AST was 250 and yesterday it was 62. So we are still out of range, but way, way better. Dr said to keep doing what we are doing! We still need to follow up with the GI specialist to determine how much liver damage she has sustained (hopefully very little) and make sure her levels keep coming down.
I am so, so relieved. Thank you everyone for your prayers and support this far. Hopefully we have it figured out and can go from here. Part of me is relieved and thankful. Part of me feels guilty that we could have essentially been poisoning our baby by feeding her nuts! oy. Or not meeting her nutritional needs by giving her a lack of vitamin D. But whatever it is I am just hopeful that we can continue to fix it and move on.
This kid is going to drive me to a breakdown, one way or another, I swear!

